| Topics |
Replies |
Author |
Views |
Last Post |
 |
Sticky: FAQ
|
7 |
Pixi |
172 |
5:13 pm, Sat 24 Jul, 2010
Rachel  |
 |
Sticky: What is Marfan Syndrome?
|
2 |
Darren |
603 |
7:34 pm, Tue 16 Mar, 2010
shona21  |
 |
Sticky: Useful website links for marfan syndrome information
|
2 |
Darren |
516 |
5:04 pm, Sun 02 Aug, 2009
Darren  |
 |
Sticky: Message in a Bottle (In Case of Emergency -ICE) Scheme
|
2 |
Cuddles |
266 |
11:06 pm, Thu 02 Jul, 2009
Cuddles  |
 |
Sticky: How do I get diagnosed with Marfans?
|
0 |
Shybushbaby |
627 |
5:42 pm, Thu 05 Mar, 2009
Shybushbaby  |
 |
Many faces of Marfan's (youtube video )
|
5 |
Cuddles |
68 |
1:53 pm, Thu 02 Sep, 2010
WildThing  |
 |
The Marfan Trust - About the Trust on Youtube
|
6 |
Darren |
73 |
10:55 am, Mon 30 Aug, 2010
Cuddles  |
 |
New Look Marfan Trust Site
|
6 |
Cuddles |
72 |
11:06 pm, Sun 29 Aug, 2010
Pixi  |
 |
Aortic Valve Replacement
[ Goto page: 1, 2 ] |
17 |
stu1874 |
393 |
10:59 am, Fri 27 Aug, 2010
Prudence  |
 |
Marfan syndrome support group
[ Goto page: 1, 2 ] |
16 |
Concerned |
234 |
12:18 pm, Sat 21 Aug, 2010
Darren  |
 |
Help and advce needed again
|
7 |
WildThing |
124 |
7:55 pm, Tue 17 Aug, 2010
WildThing  |
 |
update on foot situation your views very much needed
[ Goto page: 1, 2 ] |
17 |
WildThing |
271 |
8:06 pm, Thu 29 Jul, 2010
Cuddles  |
 |
herbal and homeopathic remedies
|
8 |
speedwell |
126 |
9:54 pm, Tue 27 Jul, 2010
june  |
 |
ADHD and CTD's
|
0 |
Cuddles |
74 |
7:27 pm, Fri 25 Jun, 2010
Cuddles  |
 |
Our First Consultation
[ Goto page: 1, 2, 3 ] |
28 |
Fenix |
890 |
2:05 am, Wed 16 Jun, 2010
Shazza  |
 |
Foot/ankle barces/support
[ Goto page: 1, 2 ] |
11 |
WildThing |
238 |
10:54 am, Sun 23 May, 2010
Al59  |
 |
Jaw surgery
[ Goto page: 1 ... 3, 4, 5 ] |
42 |
Polly |
1164 |
7:50 pm, Fri 14 May, 2010
Cuddles  |
 |
Is shakiness part of Marfans
|
6 |
Dingo |
167 |
1:14 pm, Fri 14 May, 2010
Eloise  |
 |
Twisted/severely pronated foot
[ Goto page: 1, 2 ] |
18 |
WildThing |
369 |
10:02 pm, Tue 04 May, 2010
WildThing  |
 |
post op
[ Goto page: 1, 2 ] |
11 |
marktr |
233 |
7:10 pm, Mon 03 May, 2010
Flemmy  |
 |
cardiac terminology
[ Goto page: 1, 2 ] |
11 |
loneil1 |
217 |
5:58 am, Wed 28 Apr, 2010
Shazza  |
 |
NHS Pain Management Clinics inthe Uk
[ Goto page: 1, 2 ] |
10 |
Cuddles |
175 |
7:05 pm, Sun 25 Apr, 2010
Pixi  |
 |
length of trunk versus leg length
[ Goto page: 1, 2 ] |
18 |
darlingorla |
487 |
6:02 pm, Sun 18 Apr, 2010
Flemmy  |
 |
Marfan trust spring/summer 2010 newsletter
|
3 |
Darren |
113 |
12:46 pm, Fri 16 Apr, 2010
Darren  |
 |
Marfan diagnosis - trunk / leg ratio
|
4 |
darlingorla |
262 |
12:21 pm, Mon 12 Apr, 2010
Shybushbaby  |
 |
Mouth Ulcers
|
5 |
marktr |
212 |
9:40 am, Wed 31 Mar, 2010
Darren  |
 |
Elbow question
|
4 |
mindsquatter |
293 |
1:47 pm, Mon 29 Mar, 2010
Pixi  |
 |
[ Poll ] pectus excavatum and pectus carinatum?
[ Goto page: 1, 2, 3 ] |
20 |
Darren |
6857 |
10:38 pm, Thu 25 Mar, 2010
lenny  |
 |
Numb hands at night
[ Goto page: 1, 2, 3 ] |
25 |
Darren |
618 |
4:02 pm, Sat 20 Mar, 2010
Cuddles  |
 |
Help with medical terminology!!
|
9 |
fragrocks |
295 |
7:06 pm, Thu 18 Mar, 2010
Rachel  |
 |
Painkillers
[ Goto page: 1, 2, 3 ] |
21 |
ZoeWowe |
529 |
6:32 pm, Wed 10 Mar, 2010
WildThing  |
 |
Research Project
|
0 |
Cuddles |
84 |
7:48 pm, Mon 08 Mar, 2010
Cuddles  |
 |
Looking for parents!
|
9 |
Rachel |
322 |
7:37 pm, Mon 08 Mar, 2010
leann  |
 |
Clinical Genetics Self Referal
|
1 |
Cuddles |
100 |
7:54 am, Fri 05 Mar, 2010
Darren  |
 |
NEWS FLASH ! MPs debate Musculoskeletal Conditions
|
7 |
Cuddles |
236 |
1:17 pm, Thu 04 Mar, 2010
speedwell  |
 |
Dental veneers
|
9 |
Bushbaby |
319 |
7:34 pm, Wed 24 Feb, 2010
kimberley  |
 |
Best Doctors
|
4 |
Rachel |
182 |
1:12 pm, Wed 24 Feb, 2010
Rachel  |
 |
time in hospital
[ Goto page: 1, 2 ] |
10 |
Shazza |
282 |
12:59 pm, Mon 22 Feb, 2010
ZoeWowe  |
 |
Marfan Syndrome - The Links to Copper Deficiency
|
0 |
Darren |
127 |
5:16 pm, Tue 16 Feb, 2010
Darren  |
 |
Blood Streams of the Heart
|
1 |
Darren |
82 |
3:37 pm, Thu 11 Feb, 2010
Polly  |
 |
Eye problems anyone?
|
9 |
WildThing |
250 |
1:32 pm, Mon 08 Feb, 2010
WildThing  |
 |
Cheap(er) wrist splints
[ Goto page: 1, 2 ] |
12 |
Karen |
268 |
10:24 pm, Wed 27 Jan, 2010
Karen  |
 |
ACESSIBLE NEWS
|
9 |
ZoeWowe |
167 |
2:28 pm, Sat 23 Jan, 2010
Rachel  |
 |
Spider is in hospital :(
[ Goto page: 1, 2 ] |
10 |
Polly |
324 |
10:58 am, Sat 23 Jan, 2010
Polly  |
 |
The marfan trust has been awarded £1.36 million for losartan
|
9 |
Darren |
225 |
2:13 pm, Fri 22 Jan, 2010
nannasandie  |
 |
New to forum
[ Goto page: 1, 2 ] |
10 |
wind_decor |
414 |
8:54 am, Wed 20 Jan, 2010
Darren  |
 |
spine and back pain
[ Goto page: 1, 2 ] |
11 |
speedwell |
529 |
4:21 pm, Tue 19 Jan, 2010
speedwell  |
 |
Does pain affect your appetite?
|
3 |
Polly |
118 |
12:48 am, Mon 18 Jan, 2010
Karen  |
 |
Have you noticed an increase in Pain / tiredness
|
2 |
Cuddles |
117 |
12:42 am, Mon 18 Jan, 2010
Karen  |
 |
The Tal Golesworthy Story
[ Goto page: 1, 2 ] |
10 |
Cuddles |
647 |
10:10 am, Thu 14 Jan, 2010
Polly  |
|