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Cuddles
Site Support
Joined: 04 Mar 2009
Posts: 1712
Location: east kent
54668 Fibrillin
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 Posted: 10:32 pm, Sun 09 May, 2010
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Thanks Anthony 
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Al59
Top Marf
Joined: 28 Apr 2010
Posts: 57
Location: Aberdeen
2151 Fibrillin
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| Posted: 9:26 pm, Sun 09 May, 2010
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Silly me!  I should have remembered it was under 'Things that help with day to day living' - and there was me looking for shops! 
anyway a shoe people I came across a few years ago (10 - maybe 15) is
http://www.simpleway.co.uk
What with the osteoarthritis - and the size - I need soft shoes - I'm only size 13 feet - but it's enough. Anyway I get most of my shoes from these folk.
As for clothes, a site I came across this year seems quite good - I've only bought a couple of things from them but the service is very good http://www.largeandtall.co.uk/ you will see the link at the top of the page for Tall.
Anthony |
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Cuddles
Site Support
Joined: 04 Mar 2009
Posts: 1712
Location: east kent
54668 Fibrillin
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| Posted: 8:57 pm, Mon 22 Mar, 2010
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Thanx Steph
if you pm me their internet address i will add it to the initial post xx
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If there is something wrong , those who have the ability to take action , have the responsability to take action . |
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steph.hainsworth
Member Marf
Joined: 22 Mar 2010
Posts: 10
Location: Leeds/Bradford
390 Fibrillin
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| Posted: 7:37 pm, Mon 22 Mar, 2010
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Try medissa shoes, for narrow fitting shoes. Some are a bit old fashioned, but I manage to get boots/ casual shoes. It's near my home, but they're online I think and do mail order. Also have various dates when they have sales in other areas. |
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Rachel
Super Marf
Joined: 14 Mar 2009
Posts: 700
Location: Dublin
20462 Fibrillin
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| Posted: 7:27 pm, Thu 18 Mar, 2010
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Guys when we were in London Heathrow we saw the most amazingly tall guy...Darren much taller than you!! I recon this guy was over 7ft...normally mum would glance around at someone like that but he was so tall she was dumbstruck!! Poor guy most definitely must have to have all his clothes made for him. I nearly ran up to him and stopped him to ask was this a natural thing or did he have Marfans?!!! 
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Life is like a box of chocoates, you don't know what you're gonna get next. |
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Cuddles
Site Support
Joined: 04 Mar 2009
Posts: 1712
Location: east kent
54668 Fibrillin
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| Posted: 7:56 pm, Tue 16 Mar, 2010
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Back on topic
Darren and Jo
I got these links from another site , but i can not remember which one , and Darren you are right EBAY is another place to get Clothing for tall people , i will add it .
Jo next plan is to get a topic with all the links to help people at school / work etc .
so if i go quiet dont worry xx
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shona21
Top Marf
Joined: 14 Mar 2010
Posts: 52
Location: herts,uk
1193 Fibrillin
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| Posted: 7:56 pm, Tue 16 Mar, 2010
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yep i will wait for ever if it means me talking to someone my own age not that talking to everyone else is boring its great infact amazing
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shona x:) |
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Cuddles
Site Support
Joined: 04 Mar 2009
Posts: 1712
Location: east kent
54668 Fibrillin
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| Posted: 7:46 pm, Tue 16 Mar, 2010
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i / we will do all we can to find you others in your age group to chat too Shona
It may take a bit of time so just bare with me / us xx
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If there is something wrong , those who have the ability to take action , have the responsability to take action . |
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shona21
Top Marf
Joined: 14 Mar 2010
Posts: 52
Location: herts,uk
1193 Fibrillin
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| Posted: 7:40 pm, Tue 16 Mar, 2010
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i am only 12 lol its really important to me that i find someone my own age to talk to so if you could help me at all that would be amazing thanks!!
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shona x:) |
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Shybushbaby
Super Moderator
Joined: 05 Mar 2009
Posts: 1131
Location: Marple, Cheshire
35878 Fibrillin
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| Posted: 11:39 am, Tue 16 Mar, 2010
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Cuddles
Bless you hun. It must have taken you ages searching for all these links and posting them.
You truly are an angel 
JO. XXX
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