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Darren
Site Admin
Joined: 26 Feb 2009
Posts: 2143
Location: Cheshire, UK
52844 Fibrillin
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 Posted: 12:23 pm, Tue 29 Jun, 2010
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ZoeWowe
Expert Marf
Joined: 24 Dec 2009
Posts: 37
Location: Aberdare, Cardiff
1474 Fibrillin
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| Posted: 2:13 am, Thu 18 Feb, 2010
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Signed 
xxx
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Everyday is an adventure ;)
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speedwell
Super Marf
Joined: 20 May 2009
Posts: 241
Location: somerset
8882 Fibrillin
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| Posted: 11:26 pm, Thu 04 Feb, 2010
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How many of us have been called 'wimp' or 'weak' and 'lazy' at some point in our life!
I know I have, many times.......
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"Love is enough" (William Morris) |
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Darren
Site Admin
Joined: 26 Feb 2009
Posts: 2143
Location: Cheshire, UK
52844 Fibrillin
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| Posted: 6:38 pm, Thu 04 Feb, 2010
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| Eloise wrote: |
I have signed it.
I was also forced to do PE, even though I couldn't do it and knocked my joints out of place. Its a shame I didn't have a diagnosis back then - they just said "growing pains" and that I was a wimp and lazy! |
I think everybody seems to have something bad to say about their experience of PE at school.
Not seen you for a while Eloise, hope your well!
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Eloise
Veteran Marf
Joined: 06 Mar 2009
Posts: 133
Location: Mansfield, UK
3616 Fibrillin
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| Posted: 3:53 pm, Thu 04 Feb, 2010
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I have signed it.
I was also forced to do PE, even though I couldn't do it and knocked my joints out of place. Its a shame I didn't have a diagnosis back then - they just said "growing pains" and that I was a wimp and lazy!
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(O.o) This is Bunny :)
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Benign Joint Familial Hypermobility Syndrome (BJFHS) - Confirmed Prof Bird April 2008
I am a Pharmacist and I will give my opinion on these boards. However, always ask your own health professionals for your individual circumstance. |
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Darren
Site Admin
Joined: 26 Feb 2009
Posts: 2143
Location: Cheshire, UK
52844 Fibrillin
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| Posted: 5:03 pm, Wed 03 Feb, 2010
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birdie74
New Marf
Joined: 22 Jan 2010
Posts: 3
175 Fibrillin
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| Posted: 12:06 pm, Wed 03 Feb, 2010
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hey i've signed and posted to facebook hopefully were have more people sign so they sit up and take notice hope your all well xx |
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nannasandie
Veteran Marf
Joined: 07 Mar 2009
Posts: 196
Location: Exeter, Devon
5429 Fibrillin
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| Posted: 10:56 am, Wed 03 Feb, 2010
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i have done one for me and for becky. will collect some more e-mail addresses from others too
sandie |
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meanvixen
Top Marf
Joined: 13 Nov 2009
Posts: 86
Location: scotland
2578 Fibrillin
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| Posted: 10:04 am, Wed 03 Feb, 2010
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i've signed for it, as i remember when i was at school i could never get excused from PE, i even remember having to go outside to do sports when it was really cold and it was murder, i do hope they manage to get this in force |
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Darren
Site Admin
Joined: 26 Feb 2009
Posts: 2143
Location: Cheshire, UK
52844 Fibrillin
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| Posted: 5:44 pm, Tue 02 Feb, 2010
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Our New petition has now been accepted. So please sign it and get your friends and family to sign it too.
| Code: |
The recognition of the possible non-ability to take part in PE within school, due to suffering from marfan syndrome, Loeys-Dietz syndrome & Ehlers-Danlos syndrome.
Many children with sometimes life threatening conditions are still being made to take part in PE in some UK schools. This still happens even with written information from the child's medical expert. Physical education teachers need to be made aware that when a medical consultant says No to PE, this means No.
Many sufferers are in the possibly fatal position of being at the point of Aortic dissection or pneumothorax if they were to take part in contact sports or even pushed beyond their physical capabilities.
PE staff also need to be aware that there might be a serious reason behind a child's reluctance to take part perhaps due to Muscular Skeletal problems or lack of energy. |
Here is the petition >>> Petition Here <<<
Deadline to sign up is 02 June 2010 and as with Our last petition We need at least 500 signatures before they will take this seriously.
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