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  Acid Reflux?
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Cuddles
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Joined: 04 Mar 2009
Posts: 1705
Location: east kent
54451 Fibrillin
PostPosted: 1:07 pm, Sat 24 Jul, 2010 Reply with quote

I hope things get sorted out soon xxxxxxxxxx

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Polly
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Joined: 06 Mar 2009
Posts: 1546
Location: Cheshire
37620 Fibrillin
PostPosted: 11:28 am, Sat 24 Jul, 2010 Reply with quote

I know someone who should be able to help with that, her baby had reflux and colic and she helped a friend of mine. Will pm you x

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fragrocks
Young Marf
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Joined: 18 Jul 2009
Posts: 7

472 Fibrillin
PostPosted: 2:32 pm, Wed 21 Jul, 2010 Reply with quote

Thank you! Dr mentioned something being floppy so the acid comes up .. which could be linked to CTD!

Ah well! could add it to the list but it won't get either of my men diagnosed lol!!! Next time we are seen i will bring it up.

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Still in Marfans Limbo... but our Boy looks clear so far!!!

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june
Veteran Marf
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Joined: 04 Jan 2010
Posts: 128
Location: Roade, Northampton
4016 Fibrillin
PostPosted: 11:46 am, Wed 21 Jul, 2010 Reply with quote

Hi Fragrocks Darren is absolutely right lots of us seem to suffer with this problem me included.
So maybe it could be a problem with CTD love & hugs x
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Darren
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Joined: 26 Feb 2009
Posts: 2143
Location: Cheshire, UK
52844 Fibrillin
PostPosted: 8:39 am, Wed 21 Jul, 2010 Reply with quote

Myself and other members i know have acid problems with acid reflux and i used to be on Ranitidine too.

I don't have any reasons why, but considering numerous marfan and other ctd members have this problem, we can unofficially add it to the list of problems.

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fragrocks
Young Marf
Young Marf


Joined: 18 Jul 2009
Posts: 7

472 Fibrillin
PostPosted: 10:37 pm, Tue 20 Jul, 2010 Reply with quote

Me again! My little mans Eye appointment went well.. we just had to wait around a looong time! Luckily the feisty little man kept everyone else entertained lol.

My question today is about Acid reflux. My boy is Breastfed, has been since birth and is 20 months old now. He had colic pretty much from birth. We lived with it, dealt with it. But it has carried on and on. 6 weeks ago the Dr diagnosed Acid Reflux and he is now on Ranitidine.

Does anyone have any experience of this?? is it linked to Marfans, not sure when we are due to see the genetics team again, but also do not know if it needs bringing up!

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Still in Marfans Limbo... but our Boy looks clear so far!!!

just DH to diagnose or not now!!!!!
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